Today Charlie had a follow up at Primary Children's to see how he is doing. He first had a chest x-ray which looked great. They took him off of his oxygen for a while and then watched his oxygen levels. His oxygen saturation levels were around 98-100! Yea! He no longer has to be on his huge oxygen tank. That is one less thing to haul around with us where ever we go. The doctors checked all sorts of things and said he was doing fabulous. He had a swallow study to watch to see if thin fluid goes into his lungs. He did fabulous, a little unorganized but it went into his stomach like it should! I am so proud of our little guy, he did perfect on all his tests today. A+! His feeding tube is now only in his stomach (it was in his intestines) and we will slowly be weening him off of it. We will try to give a bottle at every feeding but what he doesn't finish will go into the feeding tube. Once he is consistently eating all of his food and gaining weight at a good rate he can eat like a normal baby for the first time ever! I can't wait to finally be able to nurse Charlie!
As a side note:
Charlie now weights 8 lbs 12 ounces! In the last week he gained about 30 grams as day (15-20 grams is normal) and seems to be trying to catch up for lost time.
As a side note:
Charlie now weights 8 lbs 12 ounces! In the last week he gained about 30 grams as day (15-20 grams is normal) and seems to be trying to catch up for lost time.
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